Helping families and professionals connect with information and services for children with special health needs: Check out this resource here.
Bright Futures for Families is a national initiative for families and communities to promote and improve the health and well-being of children of all ages. We offer resources for families based on the award winning, federally supported Bright Futures initiative, developed through the support of public health, non-profit, and corporate organizations.
To access the Bright Furtures publications: http://www.brightfuturesforfamilies.org/home.shtml
Information for Parents: www.cdc.gov/parents/infants/index.html
National Center on Birth Defects and Developmental Disabilities is dedicated to helping people live to the fullest. Much of our work focuses on protecting people who are especially vulnerable to health risks - babies, children, people with blood disorders, and people with disabilities: www.cdc.gov/ncbddd/index.html
Information about children with special health care needs from the Center for Cultural Competence: http://nccc.georgetown.edu/projects/cyshcn.html
Emergency Care for Children with Special Health Care Needs, from the American College of Emergency Physicians: https://www.acep.org/Clinical---Practice-Management/Emergency-Information-Form-for-Children-With-Special-Health-Care-Needs/
Attention Deficit Disorder, To identify an ADD group in your state or locality, contact either: Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150, Landover, MD 20785, (301) 306-7070, (800) 233-4050(Voice mail to request information packet), Web: www.chadd.org
Attention Deficit Disorder Association (ADDA) P.O. Box 543, Pottstown, PA 19464-0543, (484) 945-2101, Web: www.add.org
Autism
Autism Society of Minnesota, 2380 Wycliff
Street, Suite 102, St. Paul, MN 55114, (651) 647-1083, E-mail: info@ausm.org, Web: www.ausm.org
Blind/Visual Impairments
National Federation of the Blind of Minnesota, 100 E. 22nd Street, Minneapolis, MN 55404-2514, (612) 872-0100,
Web: www.blindinc.org
American Foundation for the Blind - Midwest, 401 N. Michigan Avenue, Suite 350, Chicago, Il 60611, (312) 396-4420, Web: www.afb.org
American Council of the Blind of Minnesota, P.O. Box 7341 Minneapolis, MN 55407, (612) 730-8100, Web: www.acb.org/minnesota
Brain Injury
Brain Injury Association of
Minnesota, 34 13th Avenue, NE, Suite B001, Minneapolis, MN 55413,(800) 669-6442(in MN), Web: www.braininjurymn.org
Cerebral Palsy: United Cerebral Palsy of Minnesota: http://www.ucpmn.org/, and United Cerebral Palsy of Central Minnesota: http://www.ucpcentralmn.org/, CP Parent: http://www.cpparent.org/
Cystic Fibrosis: Minnesota Department of Health web -site, other Resources: www.childrensmn.org/Services/CysticFibrosis/ www.med.umn.edu/peds/cfcenter/team/home.html
Diabetes: Juvenile Diabetes Foundation MinnDakotas: www.jdrf.org/index.cfm?page_id=107171
Down Syndrome, Down Syndrome Association of Minnesota 656 Transfer Road,
St. Paul, MN 55114, (651) 603-0720; (800) 511-3696, Web: www.dsamn.org
Epilepsy, Epilepsy Foundation of Minnesota 1600 University Avenue
West, Suite 205, St. Paul, MN 55104, (651) 287-2300; (800) 779-0777, Web: www.efmn.org
Food Allergy Support Group of Minnesota: Empowers families affected by food allergies by providing support, education and a community to build personal connections: www.FoodAllergySupportMN.org.
Fetal Alchol Syndrome: Minnesota Organization on Fetal Alcohol Syndrome (MOFAS), http://www.mofas.org/, 1-866-90-MOFAS (66327)
Gastrointestinal Disorders: The Oley Foundation provides information to families and individuals receiving nutrition via intravenous or G or J tube feeding: http://www.oley.org/, other resources: Short Bowel Syndrome Foundation: http://www.shortbowelfoundation.org/, Crohns and Colitis Foundation: http://www.ccfa.org/, United Ostomy Associations of America, Inc.: http://www.uoaa.org/,
Hearing Loss,
Minnesota Hands and Voices: www.mnhandsandvoices.org, 709 University
Avenue W, St. Paul, MN 55104-4804, mnhv@lifetrackresources.org, Voice:(651) 265-2435, Toll Free: 1-866-DHOHKID
Learning Disabilities, Learning Disabilities Program - Children's Home Society
& Family Service 2230 Como Avenue, St. Paul, MN 55108, (651) 222-0311; (800) 982-2303(in MN) Web: www.chsfs.org
Learning
Disabilities Association of Minnesota, 5354 Parkdale Drive, Suite 200 St. Louis Park, MN 55416, (952) 922-8374,Web: www.ldaminnesota.org
Mental Health, Mental Health Association of Minnesota 2021 E. Hennepin
Avenue, Suite 412, Minneapolis, MN 55413 (612) 331-6840,Web: www.mentalhealthmn.org
NAMI-Minnesota (National Alliance for the Mentally Ill), 800 Transfer Road, Suite 7A St. Paul, MN 55114, (651) 645-2948; (888) 473-0237, Web: http://www.namihelps.org/
Minnesota Association for Children's Mental
Health, 165
Western Avenue, Suite 2 St. Paul, MN 55102, (651) 644-7333; (800) 528-4511,
Web: www.macmh.org
Speech and Hearing, Minnesota Speech-Language-Hearing Association P.O. Box
26115, St. Louis Park, MN 55426, (952) 920-0787; (800) 344-8808, Web: www.msha.net
Spina Bifida Association of Minnesota, P.O. Box 29323 Brooklyn Center, MN 55429-0323, (651) 222-6395, Web: http://mnsba.org/
Tourette Syndrome, Tourette Syndrome Association of Minnesota, Inc.
Web: www.tsa-mn.org, Andrea Robinson: 612-481-8635